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SUPPORT SERVICES ABOUT HOW TO HELP ABOUT ThyCa To view
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Thyroid Links
Thyroid Cancer at Johns Hopkins: Johns Hopkins Thyroid Tumor Center. This very helpful site is being developed by the doctors at Johns Hopkins Thyroid Tumor Center. Using easy-to-understand terms, the site has explanations about issues having to do with thyroid cancer, from basic thyroid function to diagnosis and treatment. The site also includes news and innovations in thyroid cancer treatment, a list of specialists in your area, and even allows you to create your own thyroid page to keep track of your medication and pharmacy information, track your lab results, keep track of questions for your doctor and can remind you via email when its time to refill your thyroid prescription! American
Thyroid Association. The ATA is dedicated to promoting scientific
and public understanding of the biology of the thyroid gland and its
disorders, so as to improve methods for prevention, diagnosis, and
management. The ATA supports excellence in research, patient care,
and education of patients, the public, and the medical and scientific
communities. The ATA is committed to guiding public policy as it relates
to the prevention and management of thyroid diseases. The web site
includes ATA statements on topics such as thyroxine products, generic
levothyroxine, and the role of potassium iodide; research updates
from ATA journals and meetings; and patient education materials. The
web site also includes a geographic list of thyroid and thyroid cancer
specialist physicians. ThyCa is an active member of the ATA Alliance
for Patient Education. Management Guidelines for Patients with Thyroid Nodules and Differentiated Thyroid Cancer AACE:
AACE American Association of Clinical Endocrinologists . Information
about endocrine topics, including thyroid disorders. The web site
has a geographic listing of endocrinologists, including those who
specialize in the treatment of thyroid diseases. In addition, AACE
publishes Clinical Practice Guidelines The Hormone Foundation: The Hormone Foundation: The Hormone Foundation is the public education affiliate of the professional association The Endocrine Society. The Hormone Foundation provides hormone-related health information for the public, physicians, allied health professionals and the media. The web site includes a geographic list of thyroid and thyroid cancer specialist physicians. Thyroid Cancer : Resource Center - American Cancer Society. Basic overview information. The American Cancer Society also provides information about all cancers, and services for patients and caregivers. Welcome to PubMed National Library of Medicine. Search all the medical research literature through PubMed, a service of the U.S. National Library of Medicine at the National Institutes of Health. PubMed includes over 16 million citations from MEDLINE and other life science journals for biomedical articles back to the 1950s. PubMed includes links to full text articles and other related resources. NCI's CancerNet Cancer Information (National Cancer Institute) is part of the U.S. National Institutes of Health. The NCI web site covers all types of cancers and offers information for both patients and caregivers. NCI Thyroid Cancer Info, including: Statistics, Treating Thyroid Cancer, Clinical Trials, Genetics, Causes, Risk Factors, Prevention of Thyroid Cancer, Complementary and Alternative Medicine, Testing for Thyroid Cancer, Coping with Thyroid Cancer, Support and Resources, Cancer Literature, Related Information, Emotional Concerns, and many studies. NCCN:
National Comprehensive Cancer Network. National Comprehensive
Cancer Network. The National Comprehensive Cancer Network (NCCN),
a not-for-profit alliance of 20 of the world’s leading cancer
centers, is dedicated to improving the quality and effectiveness of
care provided to patients with cancer. This is the web site address
for the NCCN Clinical Guidelines for Thyroid Cancer (2006): MD Anderson Thyroid Cancer Info. Yale Cancer Center: Thyroid Cancer Information Dana Farber Cancer Institute Thyroid Cancer Info. includes list of clinical trials Southern California Thyroid Cancer Consortium is a network of thyroid cancer centers serving the large, ethnically and socially diverse thyroid cancer population in Southern California. Medscape Medscape.com is an information resource that is part of WebMD. Medscape offers information for medical specialists, primary care physicians, and other health care professionals. There is no charge for registration. Endocrineweb. Thyroid Cancer Information. Provides information about each type of thyroid cancer and its treatment. Endocrineweb also has information about all thyroid diseases. Light of Life Foundation. Light of Life Foundation provides education for thyroid cancer patients, their families and the lay public. Thyroid Disease Resource Text - Thyroid Cancer. This chapter is from THYROID DISEASE MANAGER©, which is intended to provide physicians, researchers, and trainees around the world with information about all aspects of human thyroid physiology and thyroid disease. Thyroid Today.Educational website, particularly for clinicians. Thyroid cancer specialist physicians and other thyroidologists are writers and editors for this site. Includes patient fact sheets, physician articles, and clinical case studies that include decisionmaking steps and explanations. People Living With Cancer (PLWC). Patient information website of the American Society of Clinical Oncology (ASCO). Educational information plus free physician-led online discussions on topics related to cancer. ASCO is major professional organization representing physicians who treat people with cancer. ThyCa web site pages in Spanish National Cancer Institute: thyroid cancer information in Spanish National Cancer Institute -All cancer documents in Spanish Interpretation of Thyroid Tests Thyroid Tests Explained. Interpretation - description - sponsored by endocrineweb.com FNA Biopsy Explained: sponsored by endocrineweb.com Use of Neck Ultrasound to Diagnose Neck Recurrences in patients with papillary and follicular thyroid cancer. Diagnosis of neck recurrences in patients with differentiated thyroid carcinoma. Frasoldati A, Pesenti M, Gallo M, Caroggio A, Salvo D, Valcavi R. Cancer 2003 Jan 1;97(1):90-6 Use of Thyrogloblin testing for monitoring low-risk patients with papillary thyroid cancer. A consensus report of the role of serum thyroglobulin as a monitoring method for low-risk patients with papillary thyroid carcinoma. Mazzaferri EL, Robbins RJ, Spencer CA, Braverman LE, Pacini F, Wartofsky L, Haugen BR, Sherman SI, Cooper DS, Braunstein GD, Lee S, Davies TF, Arafah BM, Ladenson PW, Pinchera A. J Clin Endocrinol Metab. 2003 Apr;88(4):1433-41. Review. LABORATORY SUPPORT FOR THE DIAGNOSIS AND MONITORING OF THYROID DISEASE (2002) by Laurence M. Demers, Ph.D., F.A.C.B. and Carole A. Spencer Ph.D., F.A.C.B. The National Academy of Clinical Biochemistry Laboratory Medicine Practice Guidelines: Published Guidelines. A single recombinant human thyrotropin-stimulated serum thyroglobulin measurement predicts differentiated thyroid carcinoma metastases three to five years later. Kloos RT, Mazzaferri EL. J Clin Endocrinol Metab. 2005 Sep;90(9):5047-57. Epub 2005 Jun 21. PMID: 15972576 [PubMed - indexed for MEDLINE] Unavailability of Nichols Advantage Thyroglobulin Assay (2006) Papillary, Follicular and their Variants Effects of low-iodide diet on postsurgical radioiodide ablation therapy in patients with differentiated thyroid carcinoma. by Pluijmen MJ, Eustatia-Rutten C, Goslings BM, Stokkel MP, Arias AM, Diamant M, Romijn JA, Smit JW. Clin Endocrinol (Oxf). 2003 Apr;58(4):428-35. PMID: 12641625 Radioactive Iodine and the Salivary Glands. by Mandel SJ, Mandel L. Division of Endocrinology, Diabetes, and Metabolism, University of Pennsylvania Medical School, Philadelphia, Pennsylvania 19104, USA. Thyroid. 2003 Mar;13(3):265-71. Salivary
and lacrimal gland dysfunction (sicca syndrome) after radioiodine
therapy. J Nucl Med 2001 May;42(5):738-43 Effective
half-life of 131I in thyroid cancer patients. North DL, Shearer
DR, Hennessey JV, Donovan GL. Treatment of Thyroid Cancer: Emphasis on High Dose 131I Outpatient Therapy Dental Issues and Radioactive Iodine. Summary of presentation by Mark Chambers, M.S., D.M.D., at ThyCa's 2003 Conference in Houston, Texas. ThyCa Journeys Newsletter, Winter 2003-2004, page 5. Airport radiation detectors and patients who have recently received radioactive iodine. Information and recommendations from ATA Reducing the incidence of 131I-induced sialadenitis: the role of pilocarpine.Silberstein EB. Department of Nuclear Medicine, University of Cincinnati Medical Center, , Cincinnati, OH : J Nucl Med. 2008 Apr;49(4):546-9. Epub 2008 Mar 14. Review article on Managing Side effects of Sunitinib, used for some thyroid cancer patients with metastatic disease. Sunitinib therapy for metastatic renal cell carcinoma: recommendations for management of side Managing the Side Effects of Sorafenib and Sunitinib by Laura S. Wood, RN, MSN, OCN. Community Oncology, V 3, N 9, September 2006. Thyrogen (recombinant TSH) - Papillary and Follicular and their variants Genzyme's Thyrogen website: This web site has information for patients and physicians. Newly diagnosed patients and long-term survivors can read about how to obtain reimbursement and about the potential role that Thyrogen can play in thyroid cancer management. Physicians can read about thyroid cancer testing, how to obtain Thyrogen, Medicare reimbursement, and the way to use Thyrogen. Content is reviewed by experienced medical information, regulatory, legal, and marketing professionals to ensure that information is accurate and meets regulatory requirements imposed by the FDA. Booklet
from Genzyme: Understanding Thyroid Cancer Booklet
from Genzyme: Understanding Thyrogen Patient Sample Letter to Insurance Company about Thyrogen Using recombinant human TSH in the management of well-differentiated thyroid cancer: current strategies and future directions. Mazzaferri EL, Kloos RT. Thyroid 2000 Sep; 10(9): 767-78 Preparation by recombinant human thyrotropin or thyroid hormone withdrawal are comparable for the detection of residual differentiated thyroid carcinoma. Robbins, RJ et al. JCEM Vol.: 86(2):619-25, Feb. 2001 Recombinant thyroid-stimulating hormone in differentiated thyroid cancer. Krausz Y, Uziely B, Nesher R, Chisin R, Glaser B. Isr Med Assoc J 2001 Nov;3(11):843-9 Clinical comparison of whole-body radioiodine scan and serum thyroglobulin after stimulation with recombinant human thyrotropin. Haugen BR, Ridgway EC, McLaughlin BA, McDermott MT. Department of Medicine, Division of Endocrinology, University of Colorado Health Sciences Center, Denver, USA. Thyroid 2002 Jan;12(1):37-43. Thyrogen (Recombinant TSH). Management of papillary and follicular (differentiated) thyroid cancer: new paradigms using recombinant human thyrotropin. Mazzaferri EL, Massoll N. Endocr Relat Cancer 2002 Dec;9(4):227-47. A single recombinant human thyrotropin-stimulated serum thyroglobulin measurement predicts differentiated thyroid carcinoma metastases three to five years later. Kloos RT, Mazzaferri EL. J Clin Endocrinol Metab. 2005 Sep;90(9):5047-57. Epub 2005 Jun 21. PMID: 15972576 [PubMed - indexed for MEDLINE] Thyrogen® Added to Medicare’s Competitive Acquisition Program (CAP) (September 2006) FDA Approves Thyrogen® for Use in Thyroid Cancer Ablation — December 2007 Recombinant human TSH-assisted radioactive iodine remnant ablation achieves short-term clinical recurrence rates similar to those of traditional thyroid hormone withdrawal. Tuttle RM, Brokhin M, Omry G, Martorella AJ, Larson SM, Grewal RK, Fleisher M, Robbins RJ. Journal of Nuclear Medicine. 2008 May;49(5):764-70. Epub 2008 Apr 15. PMID: 18413378 [PubMed - indexed for MEDLINE] Genzyme Announces Final Terms of FDA Consent Decree. May 24, 2010. FDA CDER Statement to Healthcare Professionals: Restricted Availability of Thyrogen. May 24, 2010 Medullary Thyroid Cancer When should thyroidectomy be performed in familial medullary thyroid carcinoma gene carriers with non-cysteine RET mutations? by Niccoli-Sire P, Murat A, Rohmer V, Gibelin H, Chabrier G, Conte-Devolx B, Visset J, Ronceray J, Jaeck D, Henry JF, Proye C, Carnaille B, Kraimps JL; Groupe D'etude Des Tumeurs Endocrines. Surgery. 2003 Dec;134(6):1029-36; discussion 1036-7. PMID: 14668737 Surgical management of patients with persistent or recurrent medullary thyroid cancer. by Moley JF, Debenedetti MK, Dilley WG, Tisell LE, Wells SA. J Intern Med. 1998 Jun;243(6):521-6. PMID: 9681853. (Note: scroll down to read the artricle) Medullary Thyroid Cancer Overview: sponsored by endocrineweb.com Medullary Thyroid Cancer E-Mail Support Group. ThyCa's e-mail support group for people and families coping with medullary thyroid cancer. Anaplastic Thyroid Cancer Anaplastic thyroid cancer evolved from papillary carcinoma: demonstration of anaplastic transformation by means of the inter-simple sequence repeat polymerase chain reaction. by Wiseman SM, Loree TR, Hicks WL Jr, Rigual NR, Winston JS, Tan D, Anderson GR, Stoler DL. Arch Otolaryngol Head Neck Surg. 2003 Jan;129(1):96-100. PMID: 12525202 A phase I pharmacokinetic and translational study of the novel vascular targeting agent combretastatin a-4 phosphate on a single-dose intravenous schedule in patients with advanced cancer. by Dowlati A, Robertson K, Cooney M, Petros WP, Stratford M, Jesberger J, Rafie N, Overmoyer B, Makkar V, Stambler B, Taylor A, Waas J, Lewin JS, McCrae KR, Remick SC. Cancer Res. 2002 Jun 15;62(12):3408-16. PMID: 12067983 Anaplastic thyroid cancer: cytogenetic patterns by comparative genomic hybridization. by Miura D, Wada N, Chin K, Magrane GG, Wong M, Duh QY, Clark OH. Thyroid. 2003 Mar;13(3):283-90. PMID: 12729478 Anaplastic thyroid cancer. by Pasieka JL. Curr Opin Oncol. 2003 Jan;15(1):78-83. PMID: 12490766 Anaplastic carcinoma of the thyroid: a 24-year experience. by Tan RK, Finley RK 3rd, Driscoll D, Bakamjian V, Hicks WL Jr, Shedd DP. Head Neck. 1995 Jan-Feb;17(1):41-7; discussion 47-8. PMID: 7883548 Anaplastic Thyroid Cancer E-Mail Support Group. ThyCa's e-mail support group for people and families coping with anaplastic thyroid Cancer. Hypoparathyroidism The Hypoparathyroidism Association, Inc. The Hypoparathyroidism Association, Inc. is a voluntary, non-profit organization that provides education and support for with all forms of Hypoparathyroidism, which can result from the removal of or damage to the parathyroid glands during thyroid surgery. Thyroid Cancer and Pregnancy Reproductive
and menstrual history and papillary thyroid cancer risk: the san francisco
bay area thyroid cancer study. Cancer Epidemiol Biomarkers Prev
2002 Jan;11(1):51-7. Sakoda LC, Horn-Ross PL. Prognosis for fertility and ovarian function after treatment with radioiodine for thyroid cancer. Postgrad Med J 2002 Feb;78(916):92-3. Vini L, Hyer S, Al-Saadi A, Pratt B, Harmer C.Thyroid Unit, Royal Marsden NHS Trust, Sutton, Surrey, UK. THE MERCK MANUAL - TABLE OF CONTENTS Merck Manual (Full Reference Text) (Look it up !) RxList - An Internet Drug Index SYNTHROID Prescribing Information SYNTHROID Info. A brand of T4, levothyroxine, thyroid hormone replacement King Pharmaceuticals: Levoxyl and Cytomel Pages Levothroid web site: A brand of T4, levothyroxine, thyroid hormone replacement Partnership for Prescription Assistance: The Partnership for Prescription Assistance brings together US pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them. Many will get them free or nearly free. The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies. The information is also available in Spanish. By phone,call toll-free, 1-888-4PPA-NOW (1-888-477-2669). Radiation Exposure and Thyroid Cancer. Summary article from Memorial Sloan-Kettering Cancer Center. National Disease Research and the Human Biological Database Interchange. The National Disease Research Interchange (NDRI) is a nonprofit organization that serves scientists with customized biomaterials for use in studies to understand human disease. The Human Biological Database Interchange is part of NDRI. This resource was developed because cells, tissues, and organs are required to investigate how human disease progresses and to develop new drugs and therapies for treatments and cures. These biomaterials are placed in a repository sponsored by NDRI and made available at cost to scientists worldwide. Researchers use these biomaterials in their genetic and other studies to understand and potentially prevent disease. Cancer is one of the diseases studied. Individuals and families of patients afflicted with a wide range of medical conditions are often interested in donating organs or tissues for research targeted at understanding the disease or developing new treatment options. Normal tissue is also needed by medical researchers for 'control' comparison studies, as well as general medical research. Depending on the nature of the donation, NDRI will coordinate tissue recovery with the patient's surgeon or hospital pathology department. Exposure to I-131 through fallout from above-ground nuclear testing in the 1950s and early 60s. The National Cancer Institute's information for health care professionals and the public. Exposure to I-131 from Hanford Nuclear Reservation: Hanford Community Health Project (HCHP) Potassium Iodide information, news, and recommendations from the American Thyroid Association Potassium
Iodide and the Thyroid Gland. Interview with Kenneth D. Burman,
M.D., Endocrinologist and ThyCa Medical Advisor, 2002. Hospitalization vs. Going Home: the Ins and Outs of I-131 Treatment Chernobyl 20th Anniversary Marks 20 Years of Learning and Reflecting Support Groups - Online Groups and Local Support Groups See ThyCa's Support page for the Support Groups sponsored by ThyCa: Thyroid Cancer Survivors' Association, Inc. THYROID-ONC: Thyroid Cancer Online Support Group Summary: You can join this group by sending the message "sub THYROID-ONC your name" to listserv@listserv.acor.org More Support Services and Financial Assistance
Corporate Angel Network 1-866-328-1313 National Organizations that Offer Services to People with Cancer and Their Families Financial Assistance for Cancer Care Fact Sheet: Financial Help for People With Cancer. CancerCare's checklist, tip sheets, and resource lists: State Pharmaceutical Assistance Programs: List and information on state programs, developed by The National Conference of State Legislatures has put together a list of state programs. Partnership for Prescription Assistance: The Partnership for Prescription Assistance brings together US pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them. Many will get them free or nearly free. The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies. The information is also available in Spanish. By phone, call toll-free, 1-888-4PPA-NOW (1-888-477-2669). Patient Advocate Foundation: a non-profit organization "that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relative to their diagnosis through case managers, doctors and attorneys." Cover the Uninsured Week. Cover the Uninsured Week is the first week of May each year. The web site is available year-round. Information focuses on the millions of people without health insurance in the United States. The week has support from a wide variety of organizations, including national business, labor, faith community, medical, and other organizations. Details are on the web site www.covertheuninsured.org . AstraZeneca
Patient Assistance Programs for Prescription Drugs. Assistance
for Patients Without Prescription Drug Coverage: The Patient Assistance
Program helps uninsured patients with limited incomes obtain AstraZeneca
medications when prescribed by their doctor. Eligibility expanded
in November 2006. A family of four earning $60,000 per year, or an
individual earning $30,000 annually, who do not have prescription
drug coverage, can qualify to get AstraZeneca medicines for free.
The program provides assistance to people of all ages without drug
coverage. People with drug coverage experiencing financial hardship,
including people with Medicare Part D, may also apply to the program
for interim assistance.The Patient Assistance Program also provides
one-on-one education and information to help individuals obtain whichever
medicines their doctor recommends, even if they are made by another
manufacturer. Youth Survivor College Scholarships of American Cancer Society. The college scholarships are for students who were diagnosed with cancer before age 21. Scholarships are by region or state in the United States. To learn about scholarships in a particular region, visit www.cancer.org and put College Scholarship in the Search box. The Wellness Community. Nonprofit organization with centers providing free emotional support and education for people with any type of cancer, as well as caregivers. Financial Resources List from Family Caregiving 101 The National Financial Resources Guidebook for Patients is a state-by-state directory of programs and services that assist patients with housing, utilities, food, and transportation to medical treatment. Search for your state or call the sponsoring the organization, the Patient Advocate Foundation, at 800-532-5274. Expanded listing of drug and patient assistance programs from Cure Today Magazine. National Organization for Rare Disorders (NORD). NORD is a nonprofit federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. A rare or "orphan" disease affects fewer than 200,000 people in the United States. There are more than 6,000 rare disorders that, taken together, affect approximately 25 million Americans. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. The Graves' Disease Foundation (GDF) is a non-profit charitable organization that helps patients better understand the symptoms and treatments for Graves' disease. GDF provides patient services, including support groups, as well as public education, professional education, and support for research to find the cause and cure of Graves’ disease. Some people with Graves’ Disease also develop thyroid cancer. Phone: 877.643.3123. On-line Medical Dictionary published at the Dept. of Medical Oncology, University of Newcastle upon Tyne, United Kingdom Online Dictionaries connects to several online general dictionaries. One of these dictionaries is Welcome to Merriam-Webster Dictionary General Health and Medical Information: Mayo Clinic General Health and Medical Information: National Institutes of Health QuackWatch Home Page: This site is sponsored by Quackwatch, Inc., a nonprofit corporation whose purpose is to combat health-related frauds, myths, fads, and fallacies. Healthfinder: Federal government Web site. healthfinder® is a Federal Web site for consumers, developed by the Office of Disease Prevention and Health Promotion of the U.S. Department of Health and Human Services together with other Federal agencies. Since 1997, healthfinder® has been recognized as an important resource for linking consumers and professionals to reliable government and nonprofit health and human services information, news, and health-related organizations on the Internet. AMA - On-Line Doctor Finder: American Medical Association information on almost any doctor in the country. American Society of Clinical Oncology's Patient Information Resources Kids' Home at NCI: Many young persons are treated for cancer, HIV, and other illnesses. This section is for them. When Someone in Your Family Has Cancer: Caregiver resource from the National Cancer Institute. Hospice Info: Directory of hospice resources, prepared by the National Cancer Institute. Cancer Fatigue and Other Symptoms: This site is sponsored by the Oncology Nursing Society. It provides tips and background information about coping with fatigue and many other symptoms associated with cancer and its treatment. Cancer patients and caregivers can also submit personal questions about cancer fatigue and receive answers, by e-mail, from oncology nurses. Starbright Foundation: This foundation creates projects to help seriously ill children and adolescents cope with the challenges they face. It produces materials such as interactive educational CD-ROMs and videos about medical conditions and procedures, gives advice on talking with a health professional, and covers other issues related to children and adolescents with serious medical conditions. All materials are available free of charge. Staff can respond to calls in Spanish. Cancer Care. Support services to people with all cancer and their loved ones. CURE: Free Magazine. Cancer Updates‚ Research & Education is a quarterly magazine focusing on all cancers. It discusses treatment, research, and issues related to coping with cancer The Patient Resource Cancer Guide is a free publication that was created to empower and prepare newly diagnosed and newly restaged cancer patients to become their own advocates. Now in its fourth year, this resource helps these patients and their families map the cancer journey. Click here to read more or request your free copy. COMPLEMENTARY AND ALTERNATIVE APPROACHES TO CANCER American Cancer Society resources and information on complementary and alternative approaches
American Thyroid Association: www.thyroid.org ARGENTINA: ACTIRA: Asociacion de Pacientes con Cancer de Tiroides de la Republica ASIA AND OCEANIA: Asia and Oceania Thyroid Association: URL: http://www.aota.or.kr/ AUSTRALIA: Australian Thyroid Foundation,
P.O. Box 186, Westmead, NSW 2145 Thyroid Australia, P.O. Box 2575, Fitzroy Delivery Centre, Melbourne, VIC 3065 Australia. E-mail: support@thyroid.org.au. URL: www.thyroid.org.au BRAZIL: Instituto da Tiroide, Dr. Geraldo
Medeiros-Neto, President, Rua Prof. Artur Ramos, 96-50, CANADA: Thyroid Foundation of Canada / La Fondation canadienne de la Thyroïde, 797 Princess Street, Ste 304, KINGSTON, ON K7L 1G1, CANADA. URL: www.thyroid.ca. The Thyroid Foundation of Canada is a non-profit volunteer organization whose mission is to support thyroid patients across Canada through awareness, education, and research. Thyroid Cancer Canada / Cancer de la Tiroide Canada. URL: www.thyroidcancercanada.org. Thyroid Cancer Canada / Cancer de la Tiroide Canada is a national organization of thyroid cancer survivors dedicated to providing emotional support and information to those affected by the disease in Canada. Thry’vors is an incorporated non-profit group receiving guidance from a Medical Advisory Panel of thyroid cancer experts. Thry’vors provides services through telephone, e-mail, meetings, seminars, conferences, an internet listserv, website, newsletter, and resource materials. M.E. N. Type 1 Society (Multiple Endocrine Neoplasia Type 1), Box 100, Meota, Sask, SOM IXO, Canada; Phone: 306-892-2587 Fax: 306-892-2587; E-mail: hockey_freak99@hotmail.com DENMARK: Thyreoidea Landsforeningen, Strandkrogen 4A, 3630 Jaegerspris, Denmark E-mail: lis_l@get2net.dk URL: www.thyreoidea.dk EUROPE: European Thyroid Association. URL: http://www.eurothyroid.com/ FINLAND: Thyroid Foundation of Finland, Vettmossvagen 57, Narpes, Finland E-mail: ullslama@tawi.fi URL: www.kolumbus.fi/kilpirauhasliitto FRANCE; Association des malades de la thyroïde, B.P. 1,82700 Bourret, France. E-mail: asso.thyroide@worldonline.fr URL: www.thyro-asso.org GERMANY: Schilddrüsen-Liga Deutschland e.V., Ev. Krankenhaus Bad Godesberg, Waldstrasse 73, 53177 Bonn, Germany E-mail: info@schilddruesenliga.de URL: www.schilddruesenliga.de INTERNATIONAL: Thyroid Federation International, 797 Princess St., Suite 304, Kingston, ON K7L 1G1, CANADA Tel: 1-613-544-8364, Fax: 1-613-544-9731, e-mail: tfi@on.aibn.com URL: http://www.thyroid-fed.org/ ITALY: Associazione Italiana Basedowiani e Tiroidei, c/o Centro Minerva, Via Mazzini 6, 43100 Parma, Italy E-mail: emma99@libero.it JAPAN: Thyroid Foundation of Japan, CBON Queen Building 4th floor, Roppongi 7-18-12, Minato-ku, Tokyo 106-0032m Japan URL: www.hata.ne.jp/tfj/ LATIN AMERICA: Latin American Thyroid Society. URL: http://www.lats.org/ THE NETHERLANDS: Schildklierstichting Nederland, Stationsplein 6, 3818 LE Amersfoort, The Netherlands Tel: +31 900 8998866 E-mail: info@schildklier.nl, voorzitter@schildklier.nl URL: www.schildklier.nl NORWAY: Norsk Thyreoideaforbund, Fr. Nansens plass 9, N-0160, Oslo, Norway E-mail: post@stoffskifte.org URL: www.stoffskifte.org REPUBLIC OF GEORGIA: Georgian Union of Diabetes and Endocrine Associations (GUDEAS), Prof. Ramaz B. Kurashvili, President, Georgian Medical Diagnostic Centre, 5, Ljubljana Str., Tbiliai, 380059, Republic of Georgia E-mail: diabet@access.sanet.ge RUSSIA: Thyroid Foundation of St. Petersburg, Prof. Elina G. Gasparyan, President, "Professor" Medical Centre, 42 Chaykovsky St., St Petersburg 191123, Russia E-mail: gasparyan@peterlink.ru SWEDEN: Sköldkörtelförening i Stockholm, Skidbacksvägen 11B, Se-141 46 Huddinge, Sweden Tel: +46 (0)8 608 22 52 E-mail: skoldkortel@telia.com URL: www.skoldkortelforeningen.se Västsvenska Patientföreningen för Sköldkörtelsjuka, Mejerivagen 8, 439 36 Onsala, Sweden E-mail: info@vpfs.info URL: www.vpfs.info UNITED KINGDOM: British Thyroid Association. E-mail: contact@british-thyroid-association.org URL: www.british-thyroid-association.org British Thyroid Foundation, P.O. Box 97, Clifford, Wetherby, West Yorkshire LS23 6XD, U.K. URL: www.btf-thyroid.org Butterfly Thyroid Cancer Trust (United Kingdom). Supports patients with thyroid cancer. Hypoparathyroidism UK (HPTH UK). National organization in United Kingdom working to benefit all people with Hypoparathyroidism & other rare parathyroid conditions. Association for Multiple Endocrine Neoplasia Disorders ( AMEND) BIBLIOGRAPHY
-- FOR FURTHER READING
Low-Iodine Cookbook, Leah Guljord, editor (5th edition, 2005). Published by ThyCa: Thyroid Cancer Survivors’ Association, Inc. FREE, downloadable from ThyCa web site; also mailed for small fee. Could It Be My Thyroid? by Sheldon Rubenfeld, M.D. 3rd Edition, M. Evans and Co., 2004 Your Thyroid: A Home Reference by Lawrence Wood, M.D. David S. Cooper, M.D., and E. Chester Ridgway, M.D. 4th edition, Ballantine Books, 2005. About all thyroid diseases. The Harvard Medical School Guide to Overcoming Thyroid Problems by Jeffrey R. Garber, M.D. with Sandra Sardella White. McGraw-Hill, 2005. About all thyroid diseases. Thyroid Cancer: A Comprehensive Guide to Clinical Management, 2nd edition, Leonard Wartofsky, M.D., and Douglas Van Nostrand, M.D., editors. Medical Textbook, Humana Press, 2006. Cancer: Principles and Practice of Oncology , 7th edition, Vincent T. DeVita, Jr., M.D., Samuel Hellman, M.D., Steven A. Rosenberg, M.D., editors. Medical Textbook, Lippincott Williams & Wilkins, 2005. (2,900 pages, general chapters on cancer research, causes, treatments, prevention. Includes a chapter on thyroid cancer.) Surgery of the Thyroid and Parathyroid Glands. Gregory W. Randolph, M.D., editor. Medical textbook with many chapters on thyroid cancer management. Saunders, an imprint of Elsevier Sciences, 2003. American Thyroid Association Patient Education Web Brochures. Over 15 educational brochures on topics related to the thyroid gland and thyroid disorders. On the ATA web site. About the Review Process for the ThyCa Web Site and Links List Our web site and free support services are for education and support. They are not for commercial use. Our web site is continually expanding and now provides more than 600 pages of thyroid cancer information, free publications, survivors' and caregivers' stories, connections to support groups, and news and updates about coming events. In addition, our Links list connects readers with thousands more pages of information and support resources, including all the thyroid cancer research literature in the National Library of Medicine. Each month we receive many suggestions of materials to add to our web site's Links list. These include web sites, medical journal articles, commercially published books, and free pamphlets and booklets. We thank our readers for your suggestions. Our Publications Committee and additional volunteers review suggested materials and, as needed, consult further with members of our Medical Advisory Council for further review of medical information. Our Publications Committee members are thyroid cancer survivors, caregivers, and friends with professional and volunteer backgrounds in human services, medicine, nursing, health education, social sciences, and many other fields. The review process for these suggestions is the same as we use for our own publications. Among the factors considered are accuracy, balance, clarity, completeness, and whether the material extends or adds to material already available on or through our web site. Our review process takes from one to four months and continues during our ongoing volunteer support and education activities for thyroid cancer survivors and caregivers. At the completion of the process, selected items are added to our web site or Links list. If you would like to contribute or suggest material for our web site or Links list, please email or mail to ThyCa, Attention: Publications Committee, PO Box 1545, New York, NY 10159-1545. |
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