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SUPPORT AND FINANCIAL ASSISTANCE

Support Groups - Online Groups and Local Support Groups

See ThyCa's Support page for the Support Groups sponsored by ThyCa: Thyroid Cancer Survivors' Association, Inc.

THYROID-ONC: Thyroid Cancer Online Support Group Summary: You can join this group by sending the message "sub THYROID-ONC your name" to listserv@listserv.acor.org

More Support Services and Financial Assistance

Free Service: Lotsa Helping Hands. Free online caregiving coordination service

  The purpose of the Angel Flight America Network and the National Patient  Travel Centeris "to ensure that no financially-needy patient is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medical air transportation." Housing too.  Phone: 1-800-296-1217

Corporate Angel Network 1-866-328-1313

National Organizations that Offer Cancer-Related Services

Fact Sheet: Financial Help for People With Cancer. CancerCare's checklist, tip sheets, and resource lists:

State Pharmaceutical Assistance Programs: List and information on state programs, developed by The National Conference of State Legislatures has put together a list of state programs.

Partnership for Prescription Assistance: The Partnership for Prescription Assistance brings together US pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them. Many will get them free or nearly free. The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies. The information is also available in Spanish. By phone, call toll-free, 1-888-4PPA-NOW (1-888-477-2669).

The Patient Access Network (PAN) Foundation was founded in October 2004 as a solution to help the underinsured access the health care they so desperately need to continue living a relatively normal and productive lifestyle. PAN is an independent, national 501 (c) (3) organization dedicated to providing underinsured patients with co-payment assistance through 21 disease-specific funds that give them access to the treatments they need.

Patient Advocate Foundation: a non-profit organization "that serves as an active liaison between the patient and their insurer, employer and/or creditors to resolve insurance, job retention and/or debt crisis matters relative to their diagnosis through case managers, doctors and attorneys.".

The Cancer Legal Resource Center (CLRC) provides free information and resources on cancer-related legal issues to cancer survivors, caregivers, health care professionals, employers, and others coping with cancer. CLRC is a joint program of the Disability Rights Legal Center and Loyola Law School Los Angeles, California.

AstraZeneca has developed the “CAPRELSA Patient Access Services,” or CPAS to assess patients’ insurance coverage and direct patients to appropriate sources for financial assistance for which they may be eligible. The CPAS phone number is 800-367-4999. The CAPRELSA REMS program is at http://www.caprelsarems.com/.

Youth Survivor College Scholarships of American Cancer Society. The college scholarships are for students who were diagnosed with cancer before age 21. Scholarships are by region or state in the United States. To learn about scholarships in a particular region, visit www.cancer.org and put College Scholarship in the Search box.

Cancer Support Community (some centers are named The Wellness Community or Gilda’s Club). Nonprofit organization with centers providing free emotional support and education for people with any type of cancer, as well as caregivers.

Financial Resources List from Family Caregiving 101

Expanded listing of drug and patient assistance programs from Cure Today Magazine.

 

MORE RESOURCES

National Organization for Rare Disorders (NORD). NORD is a nonprofit federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. A rare or "orphan" disease affects fewer than 200,000 people in the United States. There are more than 6,000 rare disorders that, taken together, affect approximately 25 million Americans. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.

The Graves' Disease Foundation (GDF) is a non-profit charitable organization that helps patients better understand the symptoms and treatments for Graves' disease. GDF provides patient services, including support groups, as well as public education, professional education, and support for research to find the cause and cure of Graves’ disease. Some people with Graves’ Disease also develop thyroid cancer. Phone: 877.643.3123.

On-line Medical Dictionary published at the Dept. of Medical Oncology, University of Newcastle upon Tyne, United Kingdom

Online Dictionaries connects to several online general dictionaries. One of these dictionaries is Welcome to Merriam-Webster Dictionary

General Health and Medical Information: Mayo Clinic

General Health and Medical Information: National Institutes of Health

QuackWatch Home Page: This site is sponsored by Quackwatch, Inc., a nonprofit corporation whose purpose is to combat health-related frauds, myths, fads, and fallacies.

Healthfinder: Federal government Web site. healthfinder® is a Federal Web site for consumers, developed by the Office of Disease Prevention and Health Promotion of the U.S. Department of Health and Human Services together with other Federal agencies. Since 1997, healthfinder® has been recognized as an important resource for linking consumers and professionals to reliable government and nonprofit health and human services information, news, and health-related organizations on the Internet.

AMA - On-Line Doctor Finder: American Medical Association information on almost any doctor in the country.

American Society of Clinical Oncology's Patient Information Resources

Childhood Cancers. National Cancer Institute information and resources.

Coping with Cancer: For Caregivefrs, Family and Friends: Caregiver resource from the National Cancer Institute.

Hospice Info: Directory of hospice resources, prepared by the National Cancer Institute.

Cancer Fatigue and Other Symptoms: This site is sponsored by the Oncology Nursing Society. It provides tips and background information about coping with fatigue and many other symptoms associated with cancer and its treatment. Cancer patients and caregivers can also submit personal questions about cancer fatigue and receive answers, by e-mail, from oncology nurses.

Starbright Foundation:  This foundation creates projects to help seriously ill children and adolescents cope with the challenges they face. It produces materials such as interactive educational CD-ROMs and videos about medical conditions and procedures, gives advice on talking with a health professional, and covers other issues related to children and adolescents with serious medical conditions. All materials are available free of charge. Staff can respond to calls in Spanish.

Cancer Care. Support services to people with all cancer and their loved ones.

CURE: Free Magazine. Cancer Updates‚ Research & Education is a quarterly magazine focusing on all cancers. It discusses treatment, research, and issues related to coping with cancer

The Patient Resource Cancer Guide is a free publication that was created to empower and prepare newly diagnosed and newly restaged cancer patients to become their own advocates. Now in its fourth year, this resource helps these patients and their families map the cancer journey. Click here to read more or request your free copy.

  • Low-Iodine Diet: Options for meals and snacks.
  • One-page Low-Iodine Diet Guidelines and Tips
  • Over 340 recipes, plus snacks, and tips in ThyCa's Free downloadable Low-Iodine Cookbook.
  • You also can adapt recipes from your own cookbooks, and get family and friends to help with meal preparation.
  • Another resource is Medichef, from which to purchase prepared meals that are shipped frozen to the lower 48 states of the United States.