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ThyCa NEWS NOTES
News from ThyCa: Thyroid Cancer Survivors' Association, Inc.
IN THIS ISSUE:
After last year's conference I was eager to attend this one. ThyCa did not let me down!
I arrived at Lambert Airport in St. Louis, got the hotel shuttle right on time, and proceeded to the beautiful Sheraton Westport Chalet. This hotel had everything right within our reach. The room was exceptionally comfortable and clean, the staff was friendly, and I felt eager to get on with my learning experience.
This year all those who registered were given a bag to carry all the materials they received while going to and from the sessions and I think that was a nice touch. We were also given a floor plan of the hotel so we would know where to find each session, as well as the Program Booklet that explained who each speaker was, and sheets with the time and location of each talk.
This was my second conference, and I have been extremely impressed each time with the knowledge of the speakers, their ease in communicating the information to us, their ability to speak to the thyroid cancer survivors and their caregivers in a way we can all understand, and their patience with all attending their sessions. Also, after each session the speakers would stay and answer individual questions. They take the time to care for people.
Everyone there: the ThyCa committee, the volunteers, the doctors, the other specialists, and the hotel staff made each participant feel welcome, comfortable, and cared for. This was truly a very rewarding experience. All through the weekend I heard nothing but good, positive comments about this conference.
While in the hotel shuttle back to the airport on Monday morning two ladies were sitting across from me talking about thyroid cancer. I couldn't help but ask them if they enjoyed the conference, and, of course, they did. They received a lot of information, I was told. But, would they return next year? Yes, they said they found it helpful. They were from Canada.
My thought -- another wonderful conference! Thank you, ThyCa. Special thanks to the Conference Planning Committee for organizing this event. Great job!
Once again, hundreds of thyroid cancer survivors, family members, friends, and health care professionals came together for the annual International Thyroid Cancer Survivors' Conference. The 11th annual conference, held in St. Louis, Missouri, October 17 through 19, 2008, was sponsored by ThyCa: Thyroid Cancer Survivors' Association, Inc.
"We are honored that so many thyroid cancer survivors and their families attended and that so many distinguished experts took part," said ThyCa Executive Director Gary Bloom, a 13-year thyroid cancer survivor.
Attendees came from 31 states, Canada, and Netherlands. Participants covered a wide range of situations with every type of thyroid cancer -- papillary, follicular, medullary, anaplastic, and variants. Attendees ranged from children through seniors. They included people being tested for possible thyroid cancer, people diagnosed and treated within the past few years, some with metastatic disease and in clinical trials or seeking clinical trials of new treatments, survivors successfully treated in clinical trials, and children coping with thyroid cancer and their parents, and long-term survivors.
Highlights of the conference's 110 sessions included 40 sessions led by 25 physicians who explained the latest advances in treatment, long-term testing and follow-up, the potential use of messenger RNA as a marker, recent advances in targeted therapies, and clinical trials testing new treatments.
Physician specialists came from leading medical centers around the country, including the Cleveland Clinic Foundation, Mayo Clinic, Memorial Sloan-Kettering Cancer Center, Ohio State University Medical School, University of Chicago Medical Center, University of Texas M.D. Anderson Cancer Center, Washington University at St. Louis Medical School, Yale University Medical Center, and other major centers.
"We greatly appreciate the experts who gave of their time and knowledge for the well-being of patients," said Bloom. "Thyroid cancer brings many challenges, and requires lifelong monitoring, and both survivors and caregivers benefit tremendously from these interactions with leading clinicians and researchers."
More than 35 additional speakers included two dentists, two psychologists, nurses, social workers, a pharmacist, a nurse, mental health professionals, specialists in complementary approaches to well-being such as Reiki, the Labyrinth, QiGong, Humor and Healing, and general coping skills. Leading peer-support roundtables were survivors of each type of thyroid cancer, as well as caregivers.
Additional sessions led by a social worker, a financial planner, and three attorneys focused on financial and legal issues that can come with coping with cancer or another illness. Session topics included Financial Wellness During Cancer, Choosing and Using Financial and Insurance Advisors, Legal Issues Related to Employment, Legal Issues Related to Financial and Estate Planning, and Legal Issues Related to Social Security and Disability.
For the second year in a row, the conference offered continuing education credits to nurses. More than twelve nurses took advantage of this opportunity, and earned more than 50 cumulative education credits.
Attendees gave high praise, both during and after the conference.
"Amazing that I've learned more in one day here than in 2 years of doctor appointments! Thank You!" wrote one thyroid cancer survivor.
"Great conference, great speakers, with lots of diversity," wrote another.
"Excellent. Thank you so much to all the committee members, presenters. Affordable. Met great people. See you in Boston 2009," wrote another.
Another e-mailed to her online support group after the conference, "I also went to the conference and had a wonderful time. It is not fair that any of us have thyroid cancer, but I must say that you all are the nicest, most caring and interesting group of people yo\u could ever meet."
"Thyroid cancer is one of the few cancers where the incidence rate is increasing," explained Bloom. "In fact, it's now number 6 in women in number of cases diagnosed in the United States. If detected early, it's usually treatable. However, in some patients it can be aggressive and difficult to treat. It's crucial that we provide patient education and support, as well as information about the latest advances in treatment, testing, and clinical trials."
The 12th International Thyroid Cancer Survivors' Conference will be held in Boston, Massachusetts, on October 16 - 18, 2009.
ThyCa: Thyroid Cancer Survivors' Association, Inc. is an international nonprofit 501(c)(3) organization of thyroid cancer survivors, family members, and health professionals, dedicated to education, communication, support, awareness for early detection, and thyroid cancer research fundraising and research grants. For more information about thyroid cancer and ThyCa's free year-round support services, education, and publications, e-mail to firstname.lastname@example.org, call toll-free 1-877-588-7904, write to PO Box 1545, New York, NY 10159-1545, or visit the ThyCa web site.
Increasing Incidence of Thyroid Cancer:
Diagnosing Thyroid Cancer:
Fine Needle Aspiration Results Possibilities:
Papillary versus Follicular:
Radioactive Iodine (RAI) Decision Following Surgery for Papillary or Follicular Thyroid Cancer:
How To Raise TSH (Thyroid Stimulating Hormone) Before Radioactive Iodine:
More Sensitive Testing Now Available for Follow-up Surveillance:
Assessment of Surgeons:
Thank you to everyone who gave us your session notes. If you would like to share your notes, please e-mail them to email@example.com.
For more information about thyroid cancer, visit www.thyca.org.
Our 7th Annual Dinner/Auction Fundraiser, held in St. Louis Saturday evening, October 18, was a big success!
Together, we raised more than $30,000 for thyroid cancer research.
Many thanks to all the donors of wonderful items for the auction, to our inspiring speakers Cheri Lindle, Sherryl Pascal, and Rose Twigg, and to everyone who helped plan and organize this wonderful evening. We'd like to especially acknowledge the tremendous contribution of the host St. Louis volunteers, who solicited for numerous auction donations, and contributed greatly to the night's setup, and checkout process. The night wouldn't have been complete with your wonderful effort.
Cancer Survivors' Association (www.thyca.org) expresses our deep
Pascal also attended and participated in the 11th International Thyroid Cancer Survivors' Conference in St. Louis, Missouri, co-facilitated a session on raising awareness, and spoke at the Dinner/Auction Fundraiser.
Thank you so much, Sherryl!
Funds Raised Will Provide Education, Support, Resources and Research To Benefit Those with the Most Common Endocrine Cancer
ThyCa: Thyroid Cancer Survivor's Association has once again been accepted into the world's largest workplace giving campaign. Federal civilian, postal, and military employees are again able to choose ThyCa as a recipient of their workplace donations through the Combined Federal Campaign (CFC). This federal employees' charitable giving campaign raises millions of dollars each year for thousands of nonprofits providing health and human services throughout the world.
"Being part of the ranks of the Combined Federal Campaign helps ThyCa provide needed services and research funding to support those who are touched by this life-altering cancer," said Gary Bloom, Executive Director. "Thyroid cancer is one of the few cancers increasing in incidence. It's extremely important to strengthen and expand support services for those affected by it, as well as to increase research to find cures for all thyroid cancer."
ThyCa; Thyroid Cancer Survivors' Association, Inc., is a national nonprofit 501 (c)(3) service organization of thyroid cancer survivors, families, and health care professionals advised by nationally recognized experts on thyroid cancer and dedicated to education, communication, support, awareness for early detection, and thyroid cancer research fundraising and research grants.
Free year-round support services and resources include ThyCa's award-winning educational web site, a Person To Person Network, local support groups coast to coast, regional one-day workshops, ten e-mail support groups, a toll-free survivors' telephone number, an online newsletter, and the expanded 6th edition of the free downloadable Low-Iodine Cookbook. Free ThyCa materials, including the Cookbook, are also available in Spanish.
ThyCa began awarding grants to fund thyroid cancer research in 2003, and has awarded grants each year since then, including two new 2-year research grants in 2008.
Easy and Tasty
Tomato-Basil Pasta Salad
3 large ripe tomatoes,
1. Put tomatoes, onion, olive oil, vinegar, garlic, salt, pepper, and oregano in a large bowl; toss. Let stand at room temperature at least 30 minutes or until tomatoes release their juices, tossing occasionally.
2. Cook pasta as package directions. Drain and add to bowl with tomatoes; lightly toss.
3. Let come to room temperature. Add basil; toss.
Serve immediately or refrigerate.
Thank you, Laura! Your recipe will be added to the next edition of the FREE Downloadable Low-Iodine Cookbook. Download the cookbook, with more than 250 favorite recipes from more than 100 generous volunteers.
If you'd like to contribute your favorite recipe or tip to the cookbook's next edition, send it to firstname.lastname@example.org.
Our web site has more than 650 pages. More than 50 distinguished physicians plus numerous other specialists give ongoing input and review. We greatly appreciate the wonderful support of these medical specialists.
The web site expands nearly every week. Visit www.thyca.org often for the latest information updates and news about special events.
We welcome new volunteers at any time. To learn about volunteer opportunities, visit our Volunteer page: www.thyca.org/volunteer.htm
We invite you to join ThyCa: Thyroid Cancer Survivors' Association, Inc., to help us sustain, strengthen, and extend our services.
Your membership dues will support ThyCa's efforts to reach other survivors and their families around the world.
You may join as a one-year member, two-year member, or lifetime member.
For our online and mailed membership forms, go to www.thyca.org/membership.htm
We believe that no one should have to be alone when facing thyroid cancer.
Our free support services are offered with this as our main goal.
We thank everyone for giving your time and talents to making possible our free services, publications, and events. We're grateful to you for reaching out to others worldwide, to help connect them with ThyCa's support services and resources.
Every day, thousands of people with thyroid cancer, and their families, receive support, education, and hope from ThyCa: Thyroid Cancer Survivors' Association.
support is what makes this possible. It only takes a minute to make
a secure donation online in support of ThyCa's work (or you are welcome
to donate by mail), so click here to
Visit our website for details.
Thank you to Pat Palliard, editor, and Gary Bloom, Laura C., and Cherry Wunderlich for writing, editing, and proofreading this newsletter.
Deadline for articles and news items is the first day of each month. Your suggestions for articles are welcome.
We invite you to send News Notes to your family and friends. News Notes are also published here. For permission to reprint in another electronic or print publication, please contact us at email@example.com.
ThyCa: Thyroid Cancer Survivors' Association, Inc. is a national non-profit 501(c)(3) organization (tax ID #52-2169434) of thyroid cancer survivors, family members, and health care professionals. We are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends, as well as to public awareness for early detection, treatment, and lifetime health monitoring, and to thyroid cancer research fundraising and research grants.
Contact us for free awareness materials and information about our free services and special events. E-mail firstname.lastname@example.org, call 1-877-588-7904, fax 1-630-604-6078, write PO Box 1102, Olney, MD 20830-1102, or visit the web site.