|
|||||||||
|
SUPPORT SERVICES ABOUT HOW TO HELP ABOUT ThyCa To view
|
ThyCa NEWS NOTES In This Issue:
Spotlight Shines on Thyroid Cancer Awareness Month It’s Thyroid Cancer Awareness Month! Throughout September, survivors, caregivers, and friends everywhere will be urging everyone to “Find It Early.” Thyroid Cancer Awareness Month shines the spotlight on
You're invited to get involved! Help the next person “Find It Early,” get free education and support, and connect with others around the world. ThyCa, sponsor of Thyroid Cancer Awareness Month, invites you to become an Honor Roll Partner in raising awareness, now and throughout the year. Get the facts about thyroid cancer, plus free handouts, tips on how to help, and the calendar of coming events, on our website. New Free Webinars with Experts: September 12 and September 24 We're excited to invite you to watch and listen to two new Free 1-Hour Thyroid Cancer Webinars with Thyroid Cancer Expert Speakers, sponsored by ThyCa: Thyroid Cancer Survivors’ Association, Inc. with CancerCare and the American Thyroid Association as partners.
Watch and listen free of charge, online from any computer, anywhere in the world. Telephone access is also available. Details will be added here. Please tell everyone in your networks about these terrific free opportunities to learn. Latest News about the 15th International Thyroid Cancer Survivors’ Conference The Annual International Thyroid Cancer Survivors’ Conference is where experts, survivors, and caregivers come together to:
More than 40 distinguished medical professionals are confirmed to speak at the 15th Annual Conference, October 19-21! Many of these experts will lead more than one session. The complete speaker list is on the web site in the Conference section. We’ll add updates, as well as (late this month or in early October) the program schedule. We’ll also have sessions with specialists in coping skills and practical issues, as well as numerous roundtable discussions with ThyCa volunteers and participants from collaborating organizations. Conference Registration is open! Register early for the early-bird discount! You can register either online, or by mail, for one, two, or all three days. Go to our website, and select the Conferences page, to register. You’ll also find hotel room reservations, driving directions, airline and car rental discount information, and more. Please note the special hotel sleep room rate ($99) at the Eaglewood Resort & Spa (Meeting site) is only available for reservations made through September 28, 2012. Conference hotel rooms are filling fast, especially for pre-conference days. If the hotel website says that no rooms are available for pre-conference days, contact the Conference Team at conference@thyca.org and we’ll work with the hotel to find a room for you. The Conference section of the web site has more information about hotel rooms. Looking forward to seeing you at this unique and amazing weekend of learning, support, and friendship! Dinner/Auction Research Fundraiser Supports Thyroid Cancer Research On Saturday, October 20, 2012, you’re invited to join us at the Eaglewood Resort & Spa in Itasca, Illinois for a wonderful evening of connections, camaraderie, and fundraising for Thyroid Cancer Research. We all share the dream of research for cures for all thyroid cancer. This year we will honor our dear friend and long-time contributor and ThyCa Medical Advisor Dr. Ernie Mazzaferri. You’re invited to reserve your seat at the 11th Annual Dinner/Auction for Thyroid Cancer Research by using the online form or downloading the mail in form available on our Conferences page. Tickets are $50 each, and the net proceeds go to the ThyCa Research Funds. If you are unable to attend, you are invited to sponsor a ticket for someone else or help with a donation to the research fund. You honor us, not only by sharing this important and exciting moment in ThyCa history, but also by your continued interest and participation in helping us make a difference in our world. Thank you! New Drug Decision Update from the FDA The U.S. Food and Drug Administration is maintaining its November 29, 2012, action date for deciding whether to approve cabozantinib, a potential treatment for medullary thyroid cancer (MTC), and also decided not to have the drug on its discussion agenda on November 9. Exelixis, Inc. makes this drug. More information about Medullary Thyroid Cancer, including the MTC E-Mail Support Group, Webinars, and the 2012 Conference speakers on MTC, is available at www.thyca.org, as well as in the free handbook Thyroid Cancer Basics. Ric Blake Remembered with One-Year Anniversary Gathering Early this August, family and friends gathered in New Hampshire to remember Ric Blake, ThyCa Co-Founder and longtime volunteer, who passed away on August 15, 2011. All gathered to dedicate a beautiful granite park bench in New Hampshire, in Ric’s memory. Then everyone gathered with Diane Blake near the Blake home for refreshments and tributes. The afternoon included a slide show of some of Ric’s artistic photographs of nature, favorite places, and people, plus the video of Ric speaking of his vision for end-of-life support. The video was recorded by a member of Team Ricky, the friends and relatives who helped with Ric’s care and support and who continue to meet monthly. Also in August, ThyCa announced the first Ric Blake Memorial Thyroid Cancer Research Grant, awarded to a researcher in Sweden, in Ric’s memory and honor. Click here for ThyCa’s tribute to Ric. Raising Awareness: Radio, TV, Facebook, Blogs, Walks, Talks, Displays, More People near and far are creating innovative and varied ways to mark Thyroid Cancer Awareness Month throughout September. The theme is “Find It Early,” because, when detected early, thyroid cancer is usually treatable. Thyroid Cancer Awareness Month sponsor ThyCa: Thyroid Cancer Survivors’ Association, Inc. invites everyone to spread the message. Here are a few of the many events and activities:
Want to help? Ask us for free materials (or download flyers from our web site), plus tips for spreading the word, and how you and your business, agency, or organization can partner with ThyCa in Thyroid Cancer Awareness Month. Let us know what you’re doing to heighten awareness. Share your ideas with others. Visit the Thyroid Cancer Awareness Month page for news, announcements, free handouts and tips, and the opportunity to partner with ThyCa in this important event. Thank you for helping others! What Are the Top 10 Things to Know About Thyroid Cancer? The new free handout is here: www.thyca.org/topten.pdf. And more free handouts on the Thyroid Cancer Awareness Month page. Or ask ThyCa to mail you free Neck Check Cards, Wallet Cards, and more. Thanks very much to everyone who's helping raise awareness! Genzyme’s Rare Community Spotlights Thyroid Cancer On August 28, 2012, Genzyme's Rare Community put the spotlight on thyroid cancer awareness and ThyCa's free services, interviewing Gary Bloom, ThyCa Executive Director. The article is at www.genzymerarecommunity.com/blog for August 28. Follow us on Facebook and Twitter Book Explains Cancer Clinical Trials “Cancer Clinical Trials: A Commonsense Guide to Experimental Cancer Therapies and Clinical Trials” was written by Tomasz W. Beer, M.D., of Oregon Health and Science University, Portland, Oregon, and Larry Axmaker, Ed.D., psychologist, teacher, and writer, to give patients and caregivers a general overview of clinical trials for all kinds of cancers as well as the factors to consider when determining whether a clinical trial is a good option for their situation. This 166-page book was published in 2012 by DiaMedica Publishing. ThyCa has added it to our Links list bibliography. Rejoicing Through the Tears I am just now reaching my five-year mark of being a thyroid cancer survivor on the 27th of August. Before my cancer diagnosis, life was good, but the dreaded news shattered my, otherwise-comfortable lifestyle, and turned my own world upside down. I had 8 nodules on my thyroid gland with one tumor measuring over 2 centimeters, with it being likely that the cancer had invaded the outside margin of my lymph nodes. I had to go through an MRI, ultrasound, biopsy, pre-op tests, a total thyroidectomy, the low iodine diet, and radioactive iodine therapy to treat the cancer. I have to take thyroid hormone replacement daily for the rest of my life, not to mention all of the follow-up tests that become a way of life for anyone dealing with any type of cancer. Since my cancer diagnosis, my life has changed completely. It was a long arduous journey that only became easier with time. My faith in God pulled me through, which led me to write my book, "Rejoicing Through the Tears." I want to reach out to people going through any type of a cancer diagnosis and tell them that a cancer diagnosis doesn't always mean life is over; in fact, it can become an opportunity to make life more meaningful than ever. Since my treatment, I’m fortunate that I have never felt better in my life (I wish everyone was as fortunate in that regard). I have gone on to work in an assisted living facility, where I can encourage others every day. I will be going to Mackinac Island, MI in September for a book signing and I will be participating in the 8-mile walk around the island. As long as I have breath, I don't want to waste one day. I am passionate about getting the word out to encourage everyone I can to never give up, but to fight the good fight and never lose hope. There are some things we can all do each and every day to make our lives more meaningful. We need to find joy in simple things, by having a good attitude and developing a healthy lifestyle, by eating healthy and exercising regularly. Of course, we all must keep all of those follow up appointments to keep our health on track. We must also surround ourselves with the love of family and friends. It is so important to enjoy life and to celebrate each day! While I am reaching out to people with all types of cancer, I have a special place in my heart for those with thyroid cancer. I will always be grateful for ThyCa for all of the help the many volunteers have been while I have been writing my book. I appreciate their support and permission to use information from www.thyca.org to include in my book. I am also thankful to ThyCa and all of the contributors for the Low Iodine Cookbook. It's such a help to so many (including me) during a very difficult time. I wish everyone good health and happiness. Low-Iodine Recipe of the Month Cinnamon Raisin Bread 1 cup water Add all the ingredients in order listed except the raisins, keeping yeast and salt separate. I make a small well in the middle of the flour and put the yeast there. When you hear the "add ingredients" beep, add the raisins. This was cooked in my 1 1/2 lb bread machine. Thank you, Christi, for contributing this recipe and tips. We will include them in the next edition of ThyCa’s FREE Downloadable Low-Iodine Cookbook. Free and Downloadable Download the 7th edition of the Low-Iodine Cookbook in English for free, with more than 340 favorite recipes from more than 150 generous volunteers. The Cookbook is also available in: Please remember, while you’re welcome to download and print the entire free low-iodine cookbook, you can also print just the pages you need. This free cookbook is a wonderful help when you’re preparing to receive radioactive iodine for treatment or testing. All the recipes are favorites of some of our ThyCa volunteers, who are sharing them with everyone, to make the low-iodine diet easy and tasty. The recipes are also great for family meals and for potlucks, any time. To contribute your favorite recipe or tip, send it to recipes@thyca.org. Patients, caregivers, and health care professionals in 96 countries are now receiving ThyCa’s free education, support services, and mailed materials. Our web site has information and downloadable materials in English, Chinese, French, Japanese, and Spanish. Free Newsletter and Guestbook We invite you to join our worldwide network. We want to help you stay connected and informed. Our mission is to be there for every person affected by thyroid cancer. By signing up on ThyCa’s free Guestbook, you’ll receive the latest news about thyroid cancer, new free publications, events, and more. If you haven’t already signed up, we invite you to sign up today. Every Day: Free Webinars Listen, and learn from experts, anywhere you are in the world. Seven important thyroid cancer topics, plus 2 new webinars in September. All 9 webinars are available free at www.thyca.org/news/webinars.htm Every Week: Meet and Learn You’re invited to free Thyroid Cancer Support Group Meetings in dozens of locations. The web pages with details for all the groups are here: www.thyca.org/sg/local.htm. If you don’t see a group listed near you, find out how ThyCa can help you start a new ThyCa Support Group. Just e-mail to us at support_coord@thyca.org. More Events:
For more events, details, and updates, visit our Calendar of Events: www.thyca.org/calendar.htm. Have You Visited the Web Site Lately? We’re excited to report that the www.thyca.org web site receives more than 400,000 visits per month —more than 14,000 each day. Almost every day our volunteer webmasters make new additions or updates. More than 650 web pages provide extensive information about all types of thyroid cancer, links to a broad range of free support services, and details about awareness campaigns, as well as fundraising for thyroid cancer research. The web site has information in English, Chinese, French, Japanese, and Spanish. Recent additions include new handouts (Three Things To Tell Your Friends about Thyroid Cancer, Thyroid Cancer is not a “good” cancer, and the Top Ten Things To Know About Thyroid Cancer); new webinars, new events, and more. Free downloadable publications include the Free Low-Iodine Cookbook in English, Spanish, and French, plus the Free 50-page handbook Thyroid Cancer Basics in English and Chinese, and dozens more downloadable publications. Thank you very much to the more than 50 thyroid cancer specialists who provide their input and expertise, to our webmasters Betty Solbjor and Joel Amromin, and to the dozens of volunteers on ThyCa's Publications and Web Site Teams. Help us sustain, strengthen, and extend our services. We invite you to become a member of ThyCa: Thyroid Cancer Survivors’ Association, Inc. Your membership dues will support ThyCa's efforts to reach and serve other survivors and their families around the world. Members receive our Membership Messenger newsletter. Membership is open to everyone worldwide. You may become a 1-year ThyCa member ($25), 2-year member ($45), or lifetime member ($225). For our online Membership Form and our mailed Membership Form, go to our Membership page. Every day, thousands of people with thyroid cancer, and their families, receive support, education, and hope from ThyCa: Thyroid Cancer Survivors' Association, Inc. Your generous support, in the time you give and in financial contributions, is what makes it possible to sustain, strengthen, and expand our services and outreach. It only takes a minute to volunteer your time by e-mailing to volunteer@thyca.org or to make a donation online in support of ThyCa's work (or you are welcome to donate by mail to ThyCa, P.O. Box 964, Chesterfield, MO 63006-0964), so click here to give. Thank you! About ThyCa NEWS NOTES Please share ThyCa News Notes with your family and friends. For permission to reprint in another electronic or print publication, please contact us at publications@thyca.org. Your suggestions for articles are welcome. The deadline for articles and news items is the first day of each month. Thank you to our writing, editing, and proofreading team for this issue: Brenda George, Leah Guljord, Christi H., Pat Paillard, Barb StatasCherry Wunderlich, and Gary Bloom. The information in this newsletter is intended for educational purposes only. It is not intended, nor should it be interpreted, as medical advice or directions of any kind. Readers are advised to consult their own medical doctor(s) for all matters involving their health and medical care. ThyCa: Thyroid Cancer Survivors' Association, Inc. is a non-profit 501(c)(3) organization (tax ID #52-2169434) of thyroid cancer survivors, family members, and health care professionals. Contact us for free awareness materials and information about our free services and special events. E-mail to thyca@thyca.org, call toll-free at 1-877-588-7904, fax 1-630-604-6078, write PO Box 1102, Olney, MD 20830-1102, or visit our website. |
||||||||
